Assembly:Triplo-X-Base

Website	https://www.triple-x.info/
Contact	ccc@triple-x.info
Description	Base for people with Triplo-X syndrome
Members
Projects	create project
Self-organized Sessions	create self-organized session
Tags	genetik, sozialprojekt, triple-x, treffen
Provides stage	no
Location for self-organized sessions	no

Orga contact	{{{Has orga contact}}}URIs of the form "{{{Has orga contact}}}" are not allowed.
Brings
Projects
Uses money	{{{Uses money}}}"{{{Uses money}}}" is not in the list (yes we handle money, no money handling) of allowed values for the "Uses money" property.
Need fibre	{{{Need fibre}}}"{{{Need fibre}}}" is not in the list (no, yes would be great, yes its essential) of allowed values for the "Need fibre" property.
Extra Power	{{{Extra power}}}
Near passage	{{{Near passage}}}"{{{Near passage}}}" is not in the list (whatever, yes its essential, would be great, definitively not) of allowed values for the "Near passage" property.
Character of assembly	{{{Has assembly type}}}"{{{Has assembly type}}}" is not in the list (just a gathering space, place to show and meet) of allowed values for the "Has assembly type" property.
Seats needed	0
Extra seats	0
Aread needed	0
Arrival and build up

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Social project: building an international network to improve visibility & knowledge of the rare disease "Trisomy X" aka. "Triple-X", "Triplo-X", "47,xxx" or "Triple-X Syndrome". We try to bring together patients and their families worldwide and inform the public about the rare disease that concerns every 1:1000 born females on this planet.

You can help us with: * translations (Languages like: Portugese, French, Russian....) * searching for more information that already exists spread all over the world * getting more attention (in Germany and other countries like Brazil there are no doctors that list knowledge about this syndrome, that now comes to more attention due to free pre-natal genetic testing in Germany; In the USA, UK and Netherlands clinics, doctors and conferences already deal with the topic and this knowledge needs to be spread) for more information check our non-profit project website