The European Health Data Space (EHDS) will come 2024. After putting an opt-out-option in this proposal of the European Commission in the last minute, it is in the trilogue now. We want to point out what it means practically including the diverse use forms, also regarding data use by force. The massive excess of authority of the EU-Commission becomes so far backed by the EU-Parliarment, though the regulation of health political context is due to the national states. We furthermore want to show institutional ways available to the individual being ready if this form of robber baronry becames law.
Speakers: novider, Flysch, jockel
presentation shown in self organized session: https://patientenrechte-datenschutz.de/wp-content/uploads/2023/12/EHDS_fnf.pdf
EHDS commission draft: https://www.europarl.europa.eu/RegData/docs_autres_institutions/commission_europeenne/com/2022/0197/COM_COM(2022)0197_EN.pdf
position EU council on EHDS: https://data.consilium.europa.eu/doc/document/ST-16048-2023-REV-1/en/pdf
amendments EU parliament to EHDS: https://www.europarl.europa.eu/doceo/document/TA-9-2023-0462_EN.pdf
consolidated text with changes EU parliament: https://www.europarl.europa.eu/meetdocs/2014_2019/plmrep/COMMITTEES/CJ43/AMC/2023/11-28/Item4-EHDS-compromiseamendments_EN.pdf
Expert opinion Prof. Schröder on limits of possible anonymization of medical data (German): https://freiheitsrechte.org/uploads/documents/Freiheit-im-digitalen-Zeitalter/Gesundheitsdaten/2022-04-25-Gutachten_Schroeder-Gesundheitsdaten-Gesellschaft_fuer_Freiheitsrechte.pdf
Expert opinion Prof J.M. Veenbrink, Prof. J.W. van de Gronden, Mr. dr. L.R. Glas about legal responsibility of EU (Dutch) : https://open.overheid.nl/documenten/ronl-c248fc7eeb75444cda4d0ab4c4fd57ad4d29cb72/pdf
contact to organizers: kontakt@patientenrechte-datenschutz.de